Thursday, 2 January 2014

can you see around corners?

No I can't and perhaps it's just as well.  I did see that eldest son would go downhill to very major back surgery.  He's recovering well and woke this morning feeling very good.  That was the first time he could say that since the replacement disc and  fusion surgery.  We were out there last Saturday and it was good to see him emerging from the fog of a mass of painkilling drugs.

I certainly didn't see his brother moving in  with me because of a breakdown in his marriage. He has done things around the place which I cannot do with my busted shoulder, but of course I would much rather the split hadn't occurred.  I'm not sure what will happen there.  He definitely wants to be back together but perhaps the less I say of DIL the better.  I am not impressed with what I have actually seen of her behaviour, let alone with what I have been told.

Then yesterday the family was hit by a large bus careening unseen around a corner. We were all left feeling totally flattened.

Miss M, my nine year old granddaughter,  has been unwell for several weeks.  The doctor diagnosed and infection and growing pains which I know are a recognised ailment.  She has been very lethargic and eating practically nothing.

My son found out yesterday afternoon that she had been in Westmead Children's hospital since the morning.  He drove out.  They told him they were 99% sure she had leukaemia.  Probably Acute Lymphoblastic Leukaemia or ALL.  We were flattened.  Just flattened.

Today she had a general anaesthetic so spinal taps, bone marrow samples, brain fluid drains etc could be done.  This is to work out just which variety of leukaemia it is.  Probably ALL.  She also had an infusion of platelets as her blood has very little clotting ability right now.  Leukaemia in children accounts for 30% of childhood hospital admissions.  All now has a total remission rate of 98% but there's often a long road between diagnosis and remission.  She was told being sick could make her hair fall out and that it would be curly when it grew back.  She likes curly hair so was happy with that.  Treatment consists of several weeks of chemotherapy and then weekly and monthly doses of drugs, along with tests to see progress.  This lasts probably two years for girls and three for boys.  She's just back in the ward from theatre and the picture shows her still asleep.  Her monkey friend which she has had since babyhood is with her and she has her familiar pillow.

The family has rallied in support and messages are flying around phones.




9 comments:

2paw said...

Oh dear Jan, what a shock this diagnosis must have been, but what a reassurance to know that the prognosis is very positive. Our thoughts are with you and your family, lots of love and wiggly waggly tails.
I have found our Leukaemia nurses here to be so very helpful, and I hope that you can tap into that resource, and also the social worker and education unit.
Take care, Miss Nine looks very comfortable sleeping there.

Rose Red said...

I'm so sorry to hear about your granddaughter - I hope it helps you all to know the prognosis is good if it is ALL, although I know it probably doesn't help right now as you are all processing the news. Good that she can already see the positives of curly hair.

Judy Edmonds said...

I'm so sorry, jan; now I know what you meant about it being a dark day for your family. I wish you all, and especially your grand-daughter, the very best of luck and health. I know it will be a long hard road for all of you, and especially her, but I do hope and pray that everything will work out well in the long run.

Ms Davies said...

Oh Jan, what can I say? How dreadful for your family! There is a long road ahead, but at least some light at the end of the tunnel. She is beautiful, and will be even more beautiful when she is well, and has curly hair! Much love to you all!

Lynne said...

Oh my goodness! My thoughts and prayers are with you all! It's been one heck of a run for the whole family over several years., God bless. *hugs*

Trish Marshall said...

How heartbreaking for you and your family. I hope and pray that your granddaughter tolerates her treatment well,and how heartening to learn of that success rate,
My husband has been through chemo last year; my thoughts are with you all as you begin this journey.

Rachel said...

My thoughts are with you Jan & your family through this traumatic time. A work colleague went through this recently with her 4 year old daughter, who is now completely recovered. It is a long hard road but as they say are really good recovery rate. She mentioned that the Red Kite Charity were a great help to her, they help with the basic things such as fuel vouchers, toys etc I believe. Westmead also provide parking passes for long term patients families at a really low cost. Let me know if you would like me knit or crochet any pretty hats for her

Jan said...

Thanks for your comments and support. I can't find emails for some contacts, so am using this. She is still lethargic, having transfusions, cuddling her toy monkey etc and it breaks my heart to see her there. However, oncologists are lovely according to my son, as are the nurses and support staff and there is strong optimism about her chances.

Catherine Roberts said...

I feel really bad reading this,Ive been whinging about our lives.Heres to the best outcome and may the doctors work their magic!!Gentle hugs